Participate in Research

Browse Clinical Trials
yETI Study for Kids Living with CF and their Caregivers
Protocol: STUDY00008116
Full Title
Your ETI (yETI)
Description
The University at Buffalo (UB) Department of Medicine is enrolling kids diagnosed with cystic fibrosis (CF) and their caregivers in the yETI study. The research team is hoping to learn more about how kids and their caregivers feel about Trikafta, a medication used to treat CF symptoms.

Both children and their caregivers will complete an initial survey about their backgrounds, how they feel about their medical team, and what they think about Trikafta. Some participants will also complete daily online surveys.

Children and their caregivers will be compensated for completing different study requirements.
Compensation: Yes
?
Compensation may include cash, checks, gift cards, debit cards, or incentives like gift baskets, technology items, or merchandise.
Eligibility
-Children/teens diagnosed with cystic fibrosis who are at least 7 years old
-One caregiver of the child if they are under the age of 18 years old
-The children/teens must have been prescribed Trikafta for at least 18 months
-Has a smart device that can receive text messages
-Fluent in English
Age Group: Both Adults and Children
Principal Investigator: CARLA FREDERICK
Contact(s)
Julianne Hergenroder
jh86@buffalo.edu
Want to Learn More?

Let us know how the study team can reach you. If you do not hear back within 2 business days, then reach out to the study team directly at the contact information above and someone will assist you.

Your information will be shared only with the research study team and administrative staff for recruitment and will remain confidential. Your information will be stored until study recruitment is closed. Should you no longer want this information to be provided in the aforementioned ways, please contact the study team directly.

Study teams can login to review submissions
Study Team Login